School Time and Wacky Labs

We have been super busy getting into the school groove and leaving summer behind. Of course, we can't have a typical week leading up to the first day!

Cameron, did have a normal start and is in the swing of things. He really likes his new teacher and classmates. He knew all of them and a few are his really good friends. He is excited about the math that she has planned for them!

Last week, Reagan had her yearly transplant visit. While everything looked great, her labs that measure the rejection meds that she takes were very low. I was nervous because the labs had not been checked in a month so there is no way to tell how long it was that low. When the levels are low, the body will start to notice the foreign heart and start attacking it. We bumped up her meds and rechecked on Friday, and they went even lower! Needless to say, I was a nervous nelly this weekend! The last time she was that low was right after transplant when she started to reject. Moms remember numbers, especially important ones even if it was four years ago! So we gave her a larger dose, and Monday the labs seemed to be much better. We will recheck again this Thursday to see if they stay in the range that we like.

Really, HLHS (syndrome with her old heart) has it's own problems, but transplant is an entirely different set of problems. It is nice for me that we have to keep a closer check than we did with the old heart. I got a little too comfortable after that second surgery when she was a baby. Transplant- no- never comfortable but totally okay where we are.

School was the last thing on our minds Monday, but it was time to register for kindergarten. Reagan went with me to get registered and we were able to see her new teacher. She seems like a sweet woman that will love my baby! Reagan was very comfortable there and I am sure she will love it. She started to play with a group of girls while I filled out paperwork. I looked up a few minutes later, and she had them following her leading a game of follow the leader. Then she started crawling and they copied! It was a funny sight. Yes, I think she will be just fine next week.

She started speech again today. We have not been since November. I guess after years of therapy, both mom and child were tired. She had an evaluation and did really well. In fact, we may focus on speech a little less and more on eating issues. It is time for her to get some tough love and hopefully they can help nudge her. She is scared to swallow most foods. She is tasting new foodsso much more now, and even knows when she is hungry.

I guess all in all it has been a good but busy week. I guess when soccer and dance start, it will be even busier! I am not complaining. I love that they are healthy enough to do the things that they do. Me, hum, I guess I can rest sometime!

Hope everyone enjoys the week!